“An Afternoon for Aiden” Fundraiser set for June 9th @ Comedy Connection in EP
9 year old Silver Spring School student with Proximal Femoral Focal Deficiency
Aiden is a 9 year old student at Silver Spring School in East Providence, RI. This boy has endured 6 major surgeries with a few more to go. He was born with Proximal Femoral Focal Deficiency (PFFD). Only 1 in 200,000 children are born with this condition. PFFD is a rare, non-hereditary birth defect that affects the pelvis, particularly the hip bone, and the proximal femur. The disorder may affect one side or both, with the hip being deformed and the leg shortened.
Aiden has undergone an 8 month stay in Florida at The Paley Institute for surgery and has begun to make progress. He has missed a lot of school but has resumed classes at Silver Spring. The family has endured a lot of uninsured physical therapy and medical co-payments. Travel and many expenses are not covered and it has been a struggle for Aiden and his family.
I've come to follow Aiden's journey to someday walk with both "feet on the ground" through friendship with his grandmother, Jane Brindisi-Crevier. You may know Jane as the talented manager at T&T's 133 Club on Warren Avenue in EP. Jane has always been at the forefront of charitable causes for others in our city and state, once an active PTA parent and always involved in community efforts to help people. Hopefully, we can return the good will!
Jane and her family and friends have organized a fundraiser for her grandson. "We are optimistic that Aiden will someday be able to walk without the prosthetic leg he has had since toddlerhood. Aiden will be a success story someday," said Jane. "I thank everyone who is helping with gift certificates, raffle items and donations for our event."
The fundraiser for Aiden is on Sunday, June 9, 2019 at 12 PM at the Comedy Connection, 39 Warren Ave, East Providence, Rhode Island 02914. It will be a great afternoon of funny comedians, great raffles, prizes and a chance to help a little boy in need. His travel to the Paley Institute in Florida will enable the brilliant surgeons there to help Aiden walk without the prosthetic leg.
There are many ways in which you can help. Anyone interested in helping with gift certificates and raffle items can contact event organizers. Tickets for the event are $20 and are available from Jane Brindisi-Crevier at The 133 Club on Warren Avenue. She can also be contacted via her Facebook page by messenger. You can also contact Bob Rodericks at firstname.lastname@example.org to arrange for a donation. Donations at the door on the day of the event are also welcomed.
I ask all of my family, friends and colleagues in elected office to step up and donate to Aiden's cause. I know there are many fundraising causes out there but we as Townies (and non-Townies!) have always come through for kids in need. Let's help Aiden and his family get the health care he deserves. Diane and I will be there on June 9th and hope you can join us. If not, please think about sending a donation.