January 20, 2019

Chronically ill being denied appropriate treatment


I recently published my first book, “Crohn’s Disease…the other “C” Word….” Quite a bit of the book reflects on pain management, or the lack thereof, I should say. I advocate for hundreds who struggle from Crohn’s Disease/Ulcerative Colitis. Most doctors can longer write scripts for their patients any longer due to new laws. Many people seek solace at the emergency room only to be turned away. The term “drug seeker” has become too common in my community. I have people who are relocating to suicide-assisted states because they can no longer live in the pain. When the government changed the laws with the FDA, did they take the chronically ill into consideration? Were all the people with chronic illnesses going to be deleted? I advocate for hundreds of people for zero dollars in return. I write letters day and night, only to fall on deaf ears. I have people who contact me after incredibly painful surgeries, informing me that they were sent home with Tylenol. I have been fighting to stay alive for 20 years. I lost everything for a disease that I was given…not one that I chose. While I empathize with those that have lost loved ones to the opioid epidemic, I did not create it. My community needs help. My bill, “THE EMERGENCY COMPASSION BILL FOR THE CHRONIC ILLNESS COMMUNITY” is getting sponsored in January of 2018. I pray, the great State of Rhode Island, can be the first state to show compassion and assist us in living, not dying.
Claudia A. Merandi
5 Chedell Avenue
East Providence, RI 02914
401 523 0426


No comments on this story | Please log in to comment by clicking here
Please log in or register to add your comment
Truly local news delivered to every home in town